Continuing on his mission to find a cure for Duchenne, a dad of three from Epsom is taking on his fifth fundraising challenge in four years for a charity close to his heart.
Since two of his sons, Theo (7) and Oskar (5), were diagnosed with Duchenne Muscular Dystrophy in 2014, Nick Taussig has been fighting tirelessly to raise money for Harrison’s Fund, so it can continue its work funding research into the disease.
The charity was set up in 2012 and funds research into Duchenne – a rare genetic condition which affects all the muscles in the body, causing them to waste away. Harrison’s Fund’s goal is to get as much money as possible into the hands of the world’s best researchers, who are working to find a cure for Duchenne. The charity is currently funding 16 research projects in the US and the UK.
Since 2014 Nick has raised more than £100,000 by running marathons and organising cycling events. The latest challenge will see Nick take part in the Phoenix Riverside Marathon on Sunday 18 November.
Nick, 45, said: “Theo and Oskar are happy boys, but as their condition progresses, both of them are now part reliant on wheelchairs. Theo is due to participate in a clinical trial this year, and we hope to have Oskar on a different trial by the of next year, as Duchenne research studies, and the search for a significant treatment and/or cure, steadily gain in number and momentum I am keen to continue to do all I can to raise awareness and money for Harrison’s Fund.”
Phoenix Riverside Marathon sees participants run along the River Thames from Walton on Thames to Hampton Court and back. Runners complete four identical laps for the full marathon distance. Nick is hoping to raise £2,750.
Laura Morgan, Events Fundraiser at Harrison’s Fund said: “Nick is such an inspirational person, he just never stops with his ideas of how to raise money and awareness of the charity. The amount he has raised over the years is just incredible and like any parent would, Nick won’t rest until he finds a cure.”
To support Nick please visit : https://www.justgiving.com/fundraising/nick-taussig3