East & South Notts and Nottingham

Christmas pamper craft afternoon for the Tuberous Sclerosis Association and the Speech, Sign & Song Club

Christmas pamper craft afternoon for the Tuberous Sclerosis Association and the Speech, Sign & Song Club

I’m running a Christmas pamper craft afternoon on Saturday 12th December for the Tuberous Sclerosis Association and a local community group which helps preschool children with communication difficulties who often have underlying medical condition such as tuberous sclerosis.  My four year old son Cole has Tuberous sclerosis complex (TSC) this is a genetic condition which causes tumours in kidneys heart brain and other organs.  It causes epilepsy, Autism, learning difficulties and behaviour and sleep problems.  The Tuberous sclerosis association is vital to TSC suffers it provides support information for suffers and their families.  It helps to educate professionals on the disorder and funds research to hopefully one day find a cure to this awful disease. (further info about TSC and the association is attached http://www.tuberous-sclerosis.org  Due to my sons Autism, behavioural problems and his learning difficulties it is extremely difficult to take Cole to regular play groups.  The Speech, sign and song club has given us a place where we can go and enjoy time together where we can meet other families who are in the similar situations to us.  The group uses alternative learning methods such as sensory stimulation to encourage learning.  Since my son has been going to the group his communication skills have improved dramatically when he started a year ago he had 4-5 words he can now say 2-3 word sentences.  The group has been a lifeline for the whole family.  The group has lost grants from Broxtowe council due to lack of council funds and other grants ie children in need grant are now coming to an end the group will run out of funding by January.   If the group closes then there is no where for these children to go and other children will miss out on the opportunities this group offers  (information about group is attached http://www.speechsignsong.co.uk

Saturday 12th December 12-5pm

This Event will take place at the Royal British Legion
16 Hall Croft Beeston, Nottingham, NG91EL

Tickets are £1.00 entry at the door kids free or

Tickets and raffle tickets can be brought at Glamour Hairdressers Meadow Road Beeston Rylands Notts tel 01159257308

FOR more information contact Maddie 07951898520 Angie 07920747490 or Nicola 07963142514

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